Jonah Pournazarian and Dylan Siegel are best friends. Jonah has Glycogen Storage Disease, a rare liver disorder that doesnât have a cure. Dylan’s parents say they weren’t surprised when he told them he wanted to do something to help his best buddy deal with his illness. It was how he wanted to do help that caught their attention. He told them he was going to write a book.
Dylan told his parents he wanted to raise money for Jonah. They suggested a lemonade stand or bake sale, but “he’s like ‘Don’t patronize me. I want to do something big,’” his dad tells ABC News. By the next day, Dylan had written a book.
Chocolate Bar came about because Dylan uses the term “chocolate bar” to mean “awesome.” The book lists things that are “so chocolate bar,” like Disneyland, and ends by saying, “I like to help my friends. That is the biggest chocolate bar.” The family had 200 copies printed for a school event; they sold out in hours, bringing in $6,000. Now the family is selling not just books but T-shirts, tote bags, and cellphone cases, and has raised $400,000 so far. The money has helped fund Weinstein’s lab—which came within a day of closing—and Dylan and Jonah even received an award (that usually goes to adults) from a rare diseases advocacy group.
Maple Sugar, Bourbon, and Brown Butter Peach Crisp by The Bojon Gourmet
I … ummmmm …
I need a caboose!!
Beautiful interior work.
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